Sunday, July 7, 2013

Dinner Is Ready

I got angry tonight.
Angry at the pain.
Angry at the nausea.
Angry over something simple.

I am angry at me for being angry.

I said to Steven and Wallene, "I am going outside. Please. Do not bother me."

Wallene just walked out onto the porch to announce that dinner was ready.

I looked at her and asked "I asked to be left alone. Correct?'"

Ugly, right?

The idea of eating right now makes me want to throw up.
Hang my head over the rail and heave all the bile that is in my stomach, because I know that is all that is left.

My anger makes me want to throw up.

I wanted to be left alone.

Then Steven walked out and kissed me and said "Dinner's ready."


Am I speaking Swahili to my family?

I asked to be left alone.
I knew I was going to break. 

When is this going to end?

Can anyone tell me...

ANYONE tell me when this is going to end?

On the menu tonight [as my stomach churns typing this] is steamed shrimp, bacon cheddar potato skins, salad and potato salad. [We call it appetizer dinner - and made by Steven.]

Who wouldn't want to eat this?


I hate remission medication Sundays.

I try and it is just never good enough.


I spend the entirety of my days apologizing not being able to control my body.

I watch as my life spins out of control late in the day. 

And I can't grab it back.

I want me to come home.

Not a glimpse.
Not a hope.
Not for that one magic hour in the morning when I have finally had a good night's sleep. 

I want the whole of ME.

I want to stop talking about this.
I want to stop thinking I can cook dinner when I can't.
I want to stop thinking I can do more laundry than I should.
I want to forget that driving my car is going to cause me pain.

I want to stop asking my family to bend down to get something for me because I can't.

I want them to hear me.

I want someone to hear me.

Who am I?

I am weary of making excuses for what I think I can control. 
The things that I know look ugly to them.
The things that scare them.

I am so sorry for the pain in their eyes.

I am sick with the idea I can't accept that I shouldn't be doing these things.
With the knowledge that it isn't my fault.

But isn't it?

My fault?

Where did me go?


Unknown said...

Oh my, my heart goes out to you Janine. I am sending a bazillion prayers on your behalf that you will find some rest and relief. Love ya.

Susan Flett Swiderski said...

You're still there, sweetie. Honest. I hate that you're going through all this nasty stuff, damn it. Now I'm mad, too. It's time for the universe to treat you more gently. 12:34

P.S. Thanks for the review. It's AWESOME!

Gypsy said...

It breaks my heart that you are going through this, and all I can do is send loving thoughts.

Unknown said...

My heart goes out to you my friend, sending you lot's of loving hugs all across the pond - Squeeeze!!

Juli said...

I WANT you to know that we all have days when we are not ourselves and that's without medication.

I WANT you to know that they all love you so much that they quickly recover from the snappy/mean/uglyness.

I WANT you to know, that we all know that THAT isn't you, and that is why even when you're at your worst, we all still want to hug you.

Because that's when you need it most.

Good Morning. Hope it gets better.

Marni said...

Oh, Skip... this breaks my heart. I wish I could do something, anything, to make it all go away so you won't feel this way. I can only give you virtual hugs from the South.

Love ya.

colenic said...

Oh sweetie...I am sorry.
It isn't your fault...and you are in there somewhere...
The pain in their eyes is because they want to help you and don't know how to best do that...
They ignore your pleas for solidarity because they want you to know you are not alone...
I know it's tough..those thoughts can take over your whole self...but know, that there is another side. There will be glimpses of your old self and you will gain her back.
I love you and wish I was there to give you hugs...(and annoy you a bit when you say you want to be along) know that I am sending lots of hugs and love to gentle with yourself...Love you!

Anonymous said...

No one can know how you feel but everyone is doing their best including you. Don' t worry and take care. Let people help you.

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