Wednesday, October 15, 2014

I Can't Believe it Went There

Yeah, health problems.

What the f*ck else is new?

I was just hoping, praying, throwing pennies in fountains that THIS would NOT happen. I am not joshing about the penny/fountain thing. I have actually prayed this wouldn't happen. And I have thrown pennies, nickels and quarters at it. We actually have a wishing fountain in Orange.

 YAY us. sigh.

And when I explain it further, you all are going to laugh. I would have. About a decade ago.
But it isn't funny.  I can imagine you thinking "REALLY Skip? You can't get through THAT?"

I suppose I have to, but I just didn't want it and it is damn near laying me flat.

The least of my problems is Rheumatoid Arthritis.  When the smallest of your worries is RA? You've got other, more serious sh*t wrong with you. RA is not to be discounted.

Trust me on this. If this was the only thing? I would whine and move along, but c'mon.

But we [Steven, me and the kids] walk through it with smiles, daisies and lollipops. As we always have. Natch.

If you read back through my blog it is very evident I have been in pain for a long time.

Let me stress that . . .A L-O-N-G time.

It surprises me when I read back.  I just thought it was normal aging and none of my doctors caught it. I guess because I "looked so good". Nice going idiots.

SO, to GET TO THE POINT. . . yes Skippy move along.

The arthritis has reached my hips.  MY HIPS. I stress that because gang? IT SUCKS.

Always having to deal with it in my hands, feet, elbows, shoulders and back [I thought my back was bad...holy crap, no....this is worse] I said to Steven time and again "Thank goodness it isn't in my hips. That would suck."

Suck evidently being my favorite word.

I am only writing this because I need to SCREAM.  I actually did the other night. I freaked Steven out when I did it.  He walked into the living room and asked "What the hell was that for?"

'Cause I am a bitch like that. I just had no other release. It hurts so much. There are no words to give him, to explain, nothing. It just hurts Tadpoles.

I curl up in my quilt, with my rosary and my Vikes' pillow and I just can't.

I am doubled over trying to get to . . .the bathroom? The bedroom? The only place I am truly comfortable is flat on my back. For an hour. And then I have to stand up, bent over...walk. And lay back down. WHAT kind of life is this? [yes, still screaming. hee]

I thought child birth was the worst thing I had ever experienced in terms of pain.

Nope. Sit in a chair for a few minutes with this pain and you will feel the need to take a really sharp knife to your legs. It's insane.

I eyeball my good knives [I have two] every single day and wonder....wouldn't that feel better? Couldn't I just stabby stab my hips?  I know that is horrible, but when you live in this kind of pain for so long, you wonder.

Sick, right? Not really.  I don't care that the medical profession has let me down. Their job is to make money and they could give a rat's ass if I get better or worse.  They don't care.

No one deserves this.

Then again no one deserves their head cut off because of ISIS. Right? I know that. I should be counting the pennies I threw in that fountain, instead of crying over this.

How ca In compare the two? To compare my simple pain to those that are being murdered because of a political agenda?

Yeah, I shame myself. I do. I really don't mean it to sound so gross and there are people dying because of genocide in other countries and Ebola and hunger in our own country. . .

But? BUT . . .I weep. I lay my head on the table and sob. I don't understand this pain. I'm sorry I don't have a better description.

This is MY WORLD now. And I don't know what to do with it. It hurts so bad to live in it.

I should be thankful tho'. I know this.

My husband gets very sad seeing me in pain We were talking about something else when he said to me "Janine we have nothing." He was talking about monetary things, as we have lost so much due to medical bills, including the cost of insurance, which we are blessed to have. But our deductibles are so high, due to me.  He doesn't want his friends to think he is a failure. He isn't. You know how I love him. But he wants so much to see me out of this pain and he can't fix it. And that makes him feel powerless.

And I hate myself for that. He is the biggest, best man I know Yet? He spends hours rubbing my joints and my head to make me calm and so I can sleep. After everything else he does.

Want to know a secret?  At night we sit next to eachother and he always reaches over and strong arms my own arm Meaning he pulls it towards him. He rubs it up and down, and if you had any idea what that does for me? You would understand. He doesn't even realize he is doing it. He is focused on the football game or golf or some such stuff. But he will reach out, grab my arm and just rub.  That's nice. If you knew how it made the everything of me feel you would understand what it means that he does it.

I did have to remind him of everything we DO have. Don't you see? I am still here. [Sometimes I tease them and say "Aren't you happy? Mom's still here." It's usually around the time I ask them to unload the dishwasher.] Steven and I have a strong, faith in God and eachother, based relationship. Our eldest is engaged to be married, the two youngest are graduating this year - a roof over our head, food in the fridge. We have it all. Don't we?

And both of us also know what we have, don't get me wrong Tadpoles.

But sometimes I wish we didn't have as much as God has given us.

It is testing everything in my world. It is a hurdle I can't get past now.

Smile loudly. Life is a gift. With a ribbon I would rather not unwrap at this point.

Sorry, not one of my better days.

Love and hugs, Janine






12 comments:

ellen abbott said...

love you Janine. I'm so sorry you suffer so much. it is truly unfair.

Susan Flett Swiderski said...

I'm not gonna even try to say something trite and "comforting." Let me just say I love you, and am sorry you have so much pain. It really DOES suck.

12:34

Jason and Michelle said...

I'm sorry about the pain.
I'm glad you and hubby have each other.

CWMartin said...

No words. Just, still here. Steven is earning a great big mansion in heaven, and I hope I get invited over when you get all set up. No hurry, please.

Gizzy said...

My heart aches, you deserve better. Thinking about you, sending positive energy and love!

Kimberly Westrich said...

Hugs, hugs, hugs. I have no words to make it better. I am grateful you have such a wonderful partner in Steven. It sucks that you have this pain. It's not fair. And I am awe-struck by how well you handle it and positively reframe it and cope with it. You are an amazing woman Janine.

RunNRose said...

Amen to what Kimberley said. Believe me, when I compare my problems to yours, mine shrink big time!!!
I just wish so much there were something I could do to make YOUR life better. I am always glad to find that you have posted. Like to know that you are still hanging in there. I like to read about your cooking prowess, and your wonderful, supportive family.

SapphireBlue said...

I'm so sorry you are going through all this. Love you!

Sissy said...

Reading this one post and how doctors have failed you, I wonder: have you ever tried any alternative health remedies? I certainly feel for you as I too have constant pain and problems. If it isn't the hips, it's another area. Try vinegar and unpasteurized honey; see if it gives you any relief. Acupuncture is a miracle help also; yet most insurance doesn't cover this treatment, I believe. You poor soul; I am so sorry you suffer so dreadfully.

Jill Thomas said...

Oh Janine, I'm sorry. My daughter has RA so your blog today hits close to home. I so wish I could do something about her, and your, pain. I will pray. Hugs to you. Gentle ones.

ummm said...

I love you and your blog and I hope you feel better Miss Skippy

london_cabby said...

Sorry for the pain you're going through you don't deserve it. Your husband sounds like a good man...the best. I'm glad you have that. Take Care.
Carlos aka the London cabby